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Spina Bifida Association

When the President’s fiscal year 2012 and 2013 budgets proposed consolidating the 12 program lines into one line at the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC), the Spina Bifida Association was concerned that the National Spina Bifida Program would be eliminated. The District Policy Group developed and led a campaign of other disability organizations affected by the consolidation to restore the funding. We recruited policymakers to call and write the CDC director urging him to restore the funding and to oppose any future consolidation. We also worked with the Spina Bifida Association and other organizations to generate grassroots contacts to Members of Congress and the CDC, voicing opposition to the elimination of the funding. After a meeting with CDC Director Tom Frieden in 2012, he announced that funding would be reinstated and he would not propose program consolidation in fiscal year 2014.